Other Organisations

by Simon Rodwell | 15 September 2012 18:04

The UK organisations listed below, some of which are charities and others centres of expertise attached to hospitals, all have an interest in cancer and most of them in melanoma and/or skin cancer. See Weblinks for major national and international institutions providing online information about Melanoma.

Please help us to keep this database up to date by reporting any changes or errors, or other organisations that should be on this list.

Click on the heading to go to the organisation’s website.

Ali’s Legacy

John Cockroft

• Set up in memory of Alison Cockcroft (1964-2012)
• Supports fundraising for Manorlands, Yorkshire Cancer Reseearch and Melanoma Focus
• Website includes a vivid and poignant account of Ali’s final years

Cancer52

Jane Lyons/Simon Davies

• An alliance of more than 50 organisations working to address the inequalities that exist in policy, services and research into the less common cancers and to improve outcomes for patients
  
• Melanoma Focus is a member of this alliance

Cancer Research & Genetics UK

Nick Phillips, Sherwood, Llandraw Woods, Maesycoed, Pontypridd, South Wales, CF37 1EX

• Campaigns in the UK and Europe to raise awareness of cancer and its genetic links

The David Price Melanoma Trust

Steven Prevezer, 25 Brampton Grove, London NW4 4AE

• Founded 1989
• Provides direct contributions to specific organisations
• The education of teenagers in respect of the dangers of sun exposure
• Works closely with Teenage Cancer Trust

The Donna Annand Melanoma Charity

10 Poplar Close, La Grande Route de St Martin, St Saviour, Jersey JE2 7JP

• Founded 2011
• To assist in the prevention of, to protect against, and promote the early detection of melanoma in the Channel Island of Jersey
• To support, assist or help individuals suffering from melanoma
• To support the families and carers of, and any other persons interested in, sufferers from melanoma
• To undertake, or to finance, or to contribute towards the financing of, education and the dissemination of information in relation to melanoma generally
• To establish and maintain mole clinics to assist in the early detection and prevention of melanoma

GenoMEL (The Melanoma Genetics Consortium)

Paul Affleck, Cancer Research UK Clinical Centre, St. James’ University Hospital, Leeds LS9 7TF

• Encompasses over twenty participant centres worldwide, with many disparate groups
• Has obtained an EC Network of Excellence grant to establish a formal project management structure, allowing GenoMEL to greatly increase its European activities and to enhance and extend its research
• Develops and supports collaborations between member groups to identify melanoma susceptibility genes, assess the risk of melanoma and other cancers related to variations in these genes and evaluate gene-environment interactions

The Karen Clifford Skin Cancer Charity (SKCIN)

Marie Tudor, PO Box 9629, West Bridgeford, Nottingham, NG2 9GY

• Educating and raising awareness on the subject of sun safety and the early detection of skin cancers
• Booklet: ‘Sun Safety and Skin Cancer’
• 2011 report: Skin Cancer in the UK: The Facts

Maggie’s Centres

Laura Lee, 1st Floor, One Waterloo Street, Glasgow G2 6AY

• Centres across the UK, including the new Maggie’s Wallace Centre at Addenbrooke’s Hospital in Cambridge
• ‘Maggie’s is about empowering people to live with, through and beyond cancer by bringing together professional help, communities of support and building design to create exceptional centres for cancer care.’
• ‘Maggie’s Centres are for anyone affected by cancer. They are places where people are welcome whenever they need us – from just being diagnosed, or undergoing treatment, to post-treatment, recurrence, end of life or in bereavement.’

Maxine Wright Appeal for Hope (MWAH)

Jacqui Crawford, 97 London Road, Loughton Village, Milton Keynes, Buckinghamshire, MK5 8AG

• Founded 2010
• Raising awareness of malignant melanoma
• Providing equipment for the Critical Care Ward of The Christie Hospital

Melanoma Action & Support Scotland (website not available)

Leigh Smith, 17 Cairnhill Road, Bearsden, East Dunbartonshire, Glasgow G61 1AU

The Melanoma Awareness Project (MAP)

Cornwall

• To increase public awareness of the danger of too much sun
• To encourage people to look for the early stages of skin cancer and to seek medical help
• Sells UV-reacting beads

The Melanoma Foundation (website not available)

St George’s Healthcare NHS Trust, Blackshaw Road, Tooting, London, SW17 0QT

• Education of doctors and the public
• Public awareness
• The establishment of Patient Support Groups
• School prevention programmes
• Development of new treatments
• Study of causes, prevention and management of melanoma

Melanoma UK – Patient Support Group

• Patient support and advocacy group
• Fundraising and awareness of melanoma

The Myfanwy Townsend Melanoma Research Fund

Michelle Baker, 6 Manor Road, East Grinstead, West Sussex, RH19 1LR

• Founded 1999
• Raise awareness and publicise the serious nature of malignant melanoma, diagnostic signs and precautions that should be taken
• Prevention  and education
• Make diagnosis more available (set up Walk In Clinics)
• Find a cure (support/sponsor research)

OcuMel UK

Jo Gumbs, 139 Langley Road, Slough, Berkshire, SL3 7DZ

• OcuMel UK is a charity representing sufferers of ocular melanoma. It aims to support patients and their families by providing accurate, up-to-date information and emotional support via its website and helpline.
• The charity’s vision is a world where all ocular melanoma sufferers and their families are given the information, support and treatment they need.

RAFT (Restoration of Appearance and Function Trust)

Leonor Stjepic, Leopold Muller Building, Mount Vernon Hospital, Northwood, Middlesex, HA6 2RN

• RAFT is an independent charity carrying out innovative research to improve current treatment for patients who have suffered traumas of their skin.

Shaw Melanoma Charitable Trust (website not available)

32 St Quivox Road, Prestwick, South Ayrshire, KA9 1LU

• Funds research into melanoma
• Previously funded a researcher at the Beatson and (with Macmillan) financially supported the Beatson’s first Melanoma Clinical Nurse Specialist

Sheffield Melanoma Research Group

Weston Park Hospital Cancer Charity, Whitham Road, Sheffield, S10 2SJ

• Part of Weston Park Hospital Cancer Charity

The Skin Cancer Research Fund (SCaRF)

Caroline Newton, Frenchay Hospital, Frenchay Park Road, Bristol, BS16 1LE

• Founded 1979
• Raises money for public education and medical research into skin cancer, especially melanoma
• Aids patient support for those suffering
• Funded the Melanoma Registry, one of the largest UK computerised databases, with detailed records and regular follow up of patients since 1967
• In 2000 the charity linked with The Melanoma Study Group and offered to finance modest research projects

Skin Treatment and Research Trust (START)

Chelsea & Westminster Hospital, Fulham Road, London SW10 9NH

• Founded 1988
• Supporting young doctors who wish to dedicate some time in the laboratory conducting dermatological research projects

Teenage Cancer Trust

Third Floor, 93 Newman Street, London W1T 3EZ

• Extensive public awareness information on skin cancer and melanoma

 

 

 

Source URL: https://melanomafocus.com/information-portal/melanoma-organisations-2/

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