Uveal Melanoma Guidelines Project

by Simon Rodwell | 25 February 2013 10:50

The National Institute for Health and Care Excellence (NICE) announced in January 2015 that it had accredited the processes used by the Uveal Melanoma Guideline Development Group to produce the Uveal Melanoma National Guidelines.

nice_0Professor Martin Underwood, Chair of the NICE Accreditation Advisory Committee said: ‘I am delighted to congratulate the Uveal Melanoma Guideline Development Group for this accreditation. I commend the group on their high level of patient involvement during guideline development. It is very pleasing to see a small specialist guideline producer embrace the NICE Accreditation Programme; a programme that can help them ensure that the information they produce is as good as it can possibly be.’

Melanoma Focus funded the project. The guidelines were developed over three years by the group of experts, aided by patient representatives. The result is a comprehensive set of recommendations, based on the best available scientific evidence, that is expected to enhance patient care and improve counselling and informed decision-making, while helping clinicians gain a better understanding of outcomes.

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The guidelines have been published in The European Journal of Cancer (EJC) (Eur J Cancer 2015 Nov;51(16):2404-12) with open access. Follow this link for the PubMed abstract.

 

*** Update 30.3.16: this article has been downloaded or viewed 1,156 times since publication. ***

 

Dr Paul Nathan, who led the guideline development group, said: ‘This was an intricate and lengthy process which has resulted in the first set of clinical guidelines for this disease in the UK. We invited comments from professionals and the public in mid-2014 by means of a consultation process and are now delighted to have received the accolade of formal accreditation following an exhaustive evaluation by NICE.

‘I am grateful to all those who contributed; in particular, the Uveal Melanoma Guideline Development Group, consisting of eminent professionals involved in delivering care to uveal melanoma patients, who gave their time unstintingly and free of charge.

‘We now have an officially-approved standard of care which will guide clinicians and, above all, help to improve the treatment of patients suffering from this disease.’

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Background

There is a need for specialist guidelines on uveal (ocular) melanoma as this form of the disease is a very rare condition which is managed differently from other melanomas. Comprehensive guidance on this subject has been developed for the first time by a special Guideline Development Group (GDG) and the draft guidelines were published in June 2014 for public consultation.

The guidance covers:

The GDG and Melanoma Focus would like to thank all those who contributed their comments, which contributed to the final guideline. The GDG comprised a panel of experts made up of clinicians and patients. This group met over the past three years under the leadership of Dr Paul Nathan to review the evidence and develop recommendations. The project is wholly funded by Melanoma Focus.

Members of the Uveal Melanoma Guideline Development Group:

 

 

 

 

Dr

Miss

Professor

Ms

Professor

Dr

Radiologist

Mr

Professor

Dr

Dr

Dr

Mr

Professor

Mr

Mr

Mr

Dr

Radiologist

Dr

Ms

Paul

Victoria

Sarah

Kathryn

Bertil

Jonathan

Stephen

Paula

Lesley

Olivia

Ernie

Kieran

Christian

Neil

Ian

Sachin

Brian

Peter

Nancy

Nathan

Cohen

Coupland

Curtis

Damato

Evans

Fenwick

Ghaneh

Kirkpatrick

Li

Marshall

McGuirk

Ottensmeier

Pearce

Rennie

Salvi

Stedman

Szlosarek

Turnbull

Medical Oncologist

Ophthalmic Surgeon

Pathologist

Patient Representative

Ophthalmic Surgeon

Interventional

Hepatic Surgeon

Surgeon

Patient Representative

Methodologist

Medical Oncologist

Patient Representative

Medical Oncologist

Hepatic Surgeon

Ophthalmic Surgeon

Ophthalmic Surgeon

Interventional

Medical Oncologist

Project Manager

Source URL: http://melanomafocus.com/activities/um-guidelines-project/