by Simon Rodwell | 21 December 2015 13:06
Consultation Process Now Open
Professor Martin Gore, chairman of a group that has been developing guidelines over the past year for patients with ano-uro-genital mucosal melanoma, has announced the opening of the consultation phase of this project. He said, ‘We would like comments from a wide range of people with experience of this condition, as a patient/carer, support group or as a clinician.’
Individuals or organisations who wish to comment on this first draft of the guidelines are asked send their comments to Nancy Turnbull, the Project Manager, at firstname.lastname@example.org by 12 October. Please follow the links below for:
Alternatively, please email email@example.com and we will send you a copy.
The Guideline Development Group (GDG), set up by Melanoma Focus in 2016, consists of clinicians specialising in medical & clinical oncology, surgery, gynaecology, radiology and histopathology, as well as a nurse and a patient representative. The first guideline addresses ano-uro-genital melanoma. This will be followed by a guideline concentrating on sino-nasal melanoma.
Given the disease’s rarity, no randomised controlled trials have been identified for mucosal melanoma, but there is a large body of information relating treatments to outcomes. The challenge has been to identify the relevance of the published data to current clinical practice and produce agreed recommendations to guide healthcare professionals and inform patients and their carers.
The GDG is led by Professor Martin Gore, with project management and methodological support provided by the Project Manager, Mrs Nancy Turnbull.
This initiative follows the charity’s support for a group that successfully developed guidelines for uveal melanoma, receiving accreditation from The National Institute for Health and Care Excellence (NICE) in January 2015 (click here for further information).
The Mucosal Melanoma Guidelines were developed in accordance with a Melanoma Focus manual, Guideline Development Methodology. The Melanoma Focus development methods have been accredited by NICE as complying with their AGREE II criteria for the rigorous development of evidence-based guidelines. This replaces the methodology used in the drafting of the Uveal Melanoma Guidelines.
Membership of the Ano-Uro-Genital Mucosal Melanoma Guideline Development Group
|Professor Martin Gore||Consultant Medical Oncologist and GDG Chairman||Royal Marsden NHS Foundation Trust|
|Dr Izhar Bagwan||Consultant Histopathologist||Royal Surrey County Hospital NHS Foundation Trust|
|Dr Ruth Board||Consultant Medical Oncologist||Lancashire Teaching Hospitals NHS Foundation Trust|
|Miss Sharon Capper||Macmillan Urology Clinical Nurse Specialist||Christie NHS Foundation Trust|
|Professor Sarah Coupland||Honorary Consultant Histopathologist||University of Liverpool|
|Dr Susan Lalondrelle||Consultant Clinical Oncologist||Royal Marsden NHS Foundation Trust|
|Ms Antonia Mayberry||Patient Representative||Rochdale|
|Mr Asif Muneer||Consultant Urological Surgeon & Andrologist||University College London Hospitals NHS Foundation Trust|
|Ms Karen Nugent||Honorary Consultant Colorectal Surgeon||University Hospital Southampton NHS Foundation Trust|
|Mr Pubudu Pathiraja||Consultant in Gynaecology Oncology||Oxford University Hospitals NHS Foundation Trust|
|Dr Miranda Payne||Consultant Medical Oncologist||Oxford University Hospitals NHS Foundation Trust|
|Mr Howard Peach||Consultant Plastic & Reconstructive Surgeon||Leeds Teaching Hospitals NHS Trust|
|Mr Henry Smith||Research Fellow and Rapporteur of the Guideline Development Group||Royal Marsden NHS Foundation Trust|
|Dr Jonathan Smith||Consultant Radiologist||Leeds Teaching Hospitals NHS Trust|
|Mr Myles Smith||Consultant General Surgeon & Surgical Oncologist||Royal Marsden NHS Foundation Trust|
|Dr Sarah Westwell||Consultant Clinical Oncologist||Brighton and Sussex University Hospitals NHS Trust|
|Mr Ewan Wilson||Consultant Plastic & Reconstructive Surgeon||North Bristol NHS Trust|
|Mr Simon Rodwell||Chief Executive||Melanoma Focus|
|Mrs Nancy Turnbull||Project Manager|
Melanoma Focus is extremely grateful to the group for their generous donation of skill, time and effort.
Source URL: http://melanomafocus.com/activities/mucosal-guidelines/
Copyright ©2017 Melanoma Focus unless otherwise noted.