Mucosal Melanoma Guidelines Project

In 2016 Melanoma Focus set up a Guideline Development Group (GDG) to develop guidelines for mucosal melanoma. The first guideline will address ano-uro-genital melanoma, to be followed by a guideline concentrating on sino-nasal melanoma.

Given the disease’s rarity, no randomised controlled trials have been identified for mucosal melanoma, but there is a large body of information relating treatments to outcomes. The challenge has been to identify the relevance of the published data to current clinical practice and produce agreed recommendations to guide healthcare professionals and inform patients and their carers.

The GDG is led by Professor Martin Gore, with project management and methodological support provided by the Project Manager, Mrs Nancy Turnbull. The project is funded by Melanoma Focus.

The first draft of the guideline is now almost complete. The next stage is for the draft to be sent out for consultation among interested parties. This is expected to take place during the Summer of 2017. If you wish to register an interest in reviewing these guidelines during the consultation process, either in person or as an organisation, please email Nancy Turnbull:

The GDG comprises the following:

Professor Martin Gore Consultant Medical Oncologist and GDG Chairman Royal Marsden NHS Foundation Trust
Dr Izhar Bagwan Consultant Histopathologist Royal Surrey County Hospital NHS Foundation Trust
Dr Ruth Board Consultant Medical Oncologist Lancashire Teaching Hospitals NHS Foundation Trust
Miss Sharon Capper Macmillan Urology Clinical Nurse Specialist Christie NHS Foundation Trust
Professor Sarah Coupland Honorary Consultant Histopathologist University of Liverpool
Dr Susan Lalondrelle Consultant Clinical Oncologist Royal Marsden NHS Foundation Trust
Ms Antonia Mayberry Patient Representative Rochdale
Mr Asif Muneer Consultant Urological Surgeon & Andrologist University College London Hospitals NHS Foundation Trust
Ms Karen Nugent Honorary Consultant Colorectal Surgeon University Hospital Southampton NHS Foundation Trust
Mr Pathi Pathiraja Consultant in Gynaecology Oncology Oxford University Hospitals NHS Foundation Trust
Dr Miranda Payne Consultant Medical Oncologist Oxford University Hospitals NHS Foundation Trust
Mr Howard Peach Consultant Plastic & Reconstructive Surgeon Leeds Teaching Hospitals NHS Trust
Mr Henry Smith Research Fellow and Rapporteur of the Guideline Development Group Royal Marsden NHS Foundation Trust
Dr Jonathan Smith Consultant Radiologist Leeds Teaching Hospitals NHS Trust
Mr Myles Smith Consultant General Surgeon & Surgical Oncologist Royal Marsden NHS Foundation Trust
Dr Sarah Westwell Consultant Clinical Oncologist Brighton and Sussex University Hospitals NHS Trust
Mr Ewan Wilson Consultant Plastic & Reconstructive Surgeon North Bristol NHS Trust
Mr Simon Rodwell Chief Executive Melanoma Focus
Mrs Nancy Turnbull Project Manager

Melanoma Focus is extremely grateful to the group for their generous donation of skill, time and effort.

This initiative follows the charity’s support for a group that successfully developed guidelines for uveal melanoma, receiving accreditation from The National Institute for Health and Care Excellence (NICE) in January 2015 (click here for further information).

The Mucosal Melanoma Guidelines were developed in accordance with a Melanoma Focus manual, Guideline Development Methodology. The Melanoma Focus development methods have been accredited by NICE as complying with their AGREE II criteria for the rigorous development of evidence-based guidelines. This replaces the methodology used in the drafting of the Uveal Melanoma Guidelines.



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